Project Respect: LGBTQ+ experiences withh healthcare providers for serious illness (SA317A).

dc.contributor.authorStein, Gary L.
dc.contributor.authorBerkman, Cathy
dc.contributor.authorGodfrey, David
dc.contributor.authorJavier, Noelle Marie
dc.contributor.authorMaingi, Shail
dc.contributor.authorRosa, William E.
dc.contributor.authorAcquaviva, Kimberly D.
dc.date.accessioned2024-04-02T15:46:32Z
dc.date.available2024-04-02T15:46:32Z
dc.date.issued2023
dc.descriptionScholarly article / Open accessen_US
dc.description.abstractOutcomes: 1. Define the extent and type of disrespectful, inappropriate, and abusive practices faced by many lesbian, gay, bisexual, transgender, and queer (LGBTQ+) individuals and their partners/spouses when receiving care for serious illness, including hospice and palliative care 2. Address the personal impact of serious illness care, including hospice and palliative care, on LGBTQ+ patients and families, and address such disparities of care at their institutions Lesbian, gay, bisexual, transgender, and queer (LGBTQ+) individuals experience discrimination in health care—including palliative, hospice, and long-term care. Providers and institutions may be uncomfortable with, and often don't ask patients about, sexual orientation and gender identity (SOGI). LGBTQ+ patients fear being open about their identities; not receiving equal, competent, or safe treatment; and having their family of choice and surrogates disrespected or ignored. This presentation reports on Project Respect, which describes care to seriously ill LGBTQ+ persons that was inadequate, disrespectful, or abusive due to SOGI. A mixed-methods study using an online survey was conducted. The sample was LGBTQ+ individuals with a serious illness, and partners/spouses and widows of such individuals. Respondents were recruited through organizations serving the LGBTQ+ community, older adults, and palliative and hospice care organizations. Questions included type of serious illness, healthcare services used, and whether and how care was inadequate, disrespectful, or abusive due to SOGI for both the patient and partner, and from healthcare professionals and from support staff. Of 225 respondents, 44% reported their healthcare provider was insensitive; 33% said providers were not aware of LGBTQ+ health needs; and one-quarter said their providers disregarded their treatment decisions, made them feel judged for being LGBTQ, used incorrect pronouns, were rude, refused or denied them care, and/or imposed their religious beliefs. Descriptions of poor care and how it is experienced are included. These findings provide strong evidence that LGBTQ+ patients and their partners often receive discriminatory care at very vulnerable moments of their lives. Disrespectful care can negatively affect patients' trust in providers and institutions, and lead to delaying or avoiding care, and not disclosing medical information. These findings have implications for staff training, practice, and institutional and public policy, including policy barriers to respectful and non-discriminatory care. [ABSTRACT FROM AUTHOR] Copyright of Journal of Pain & Symptom Management is the property of Elsevier B.V. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)en_US
dc.description.sponsorshipThis study was supported by a 2021 grant from the Borchard Foundation Center on Law and Aging.en_US
dc.identifier.citationStein, G. L., Berkman, C., O’Mahony, S., Godfrey, D., Javier, N. M., Maingi, S., Rosa, W. E., & Acquaviva, K. D. (2023). Project Respect: LGBTQ+ Experiences with Healthcare Providers for Serious Illness (SA317A). Journal of Pain & Symptom Management, 65(3), e307. https://doi.org/10.1016/j.jpainsymman.2022.12.137en_US
dc.identifier.doihttps://doi.org/10.1016/j.jpainsymman.2022.12.137en_US
dc.identifier.issn0885-3924
dc.identifier.urihttps://ezproxy.yu.edu/login?url=https://search.ebscohost.com/login.aspx?direct=true&AuthType=ip,sso&db=a9h&AN=161816355&site=eds-live&scope=siteen_US
dc.identifier.urihttps://hdl.handle.net/20.500.12202/10103
dc.language.isoen_USen_US
dc.publisherOxforden_US
dc.relation.ispartofseriesJournal of Pain & Symptom Management;65(3)
dc.rightsAttribution-NonCommercial-NoDerivs 3.0 United States*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/3.0/us/*
dc.subject*MEDICAL personnelen_US
dc.subject*LGBTQ+ familiesen_US
dc.subject*LGBTQ+ peopleen_US
dc.subject*DISCRIMINATION in medical careen_US
dc.subject*HOSPICE nursesen_US
dc.subject*SEXUAL orientationen_US
dc.titleProject Respect: LGBTQ+ experiences withh healthcare providers for serious illness (SA317A).en_US
dc.typeArticleen_US
local.yu.facultypagehttps://www.yu.edu/faculty/pages/stein-garyen_US

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